Saturday, March 21, 2015

Thermoregulation in Fibromyalgia




Last night I was feeling under the weather and just lousy. I felt like I was coming down with a "normal people sickness"! Now, those of us with fibromyalgia know exactly what that means. Throw in an illness like the common cold on top of our everyday sickness and we just feel like the world as we know it is ending. Though, strange as it is, my fibromyalgia sometimes gets better when I get "normal people sick". Don't judge, but I sometimes wish to get a cold just for an escape from the fibro for awhile. Other times, I'm not so lucky. Anyways, I was feverishly burning up, and felt like I was going to pass out because I was so damn hot. So, I went and grabbed my temporal thermometer, and took my temperature. 95.0 degrees Fahrenheit!!! WTF? That is hypothermic temperature. This cannot be right I told myself, so I compared it to my sons temperature. His was a healthy 98.4. So, I tested mine again. 95.2. And over, and over again I took my temperature. They all came out about the same and my son's always came out normal.

After a little bit of research on human body temperature I learned that in temperatures such as this classify as hypothermia. Typical symptoms of hypothermia are intense shivering, bluing or greying of the skin, mental changes, and a few others. I didn't have any of these, except for the mental confusion and being really unfocused. No shivering, no discoloration of the skin. I did not even feel cold. In fact, I felt very warm. So, what was going on? This is not the first time I have noticed that when it felt like I should be running a fever, my temperature was abnormally low. It went up by a couple degrees but peaked at 97.2. This morning, I took my basal body temperature (the first temperature in the morning before any activity). It was at a steady 96.8 for most of the morning, and rose to 97.6 in the afternoon. Still below or just finally reaching the normal range,.

Now, any physician or anybody with any sort of medical background knows that a person's body temperature is one of the most important indicators of health. A low body temperature can lead to all sorts of significant symptoms, most of which are the same symptoms that are associated with fibromyalgia. Headaches, aches and pains, slow metabolism, weight gain, mental fogging, sleep disturbances, and many, many others. So, what is the connection?



Current studies point to a central nervous system component of fibromyalgia, particularly the autonomic nervous system. This controls everything we are unconscious of; heart rate, breathing, and body temperature among other things. Ah, body temperature. Our hypothalamus is supposed to be helping to regulate our body temperatures, which is yet another organelle that has been proven to be affected in fibromyalgia. So is our unbalanced nervous system causing problems for our hypothalamus, or is our hypothalamus making adverse changes in our nervous systems? I have not run across anything that gives me the answer to this yet.

Either way, having a low body temperature can wreak havoc in your body. Imagine really thick viscous blood that flows more like molasses. Imagine every cell in your body trying to perform it's duties in an environment that is not meant to support cell life. Imagine molecules slowing down and not being able to perform their duties at all. Imagine a pH change significant enough to start causing cells to commit apoptosis, or cell suicide, programmed death. Slowly, these cells die off and the regeneration of cells is much slower than in a normal temperature body. Eventually, sickness ensues and wins out. If your body stays in a state as this for long enough it can become Wilson's Temperature Syndrome, which is associated with poor thyroid functioning. You can learn more about it here: http://en.wikipedia.org/wiki/Wilson%27s_temperature_syndrome

The question now is how do you increase your body temperature? Exercise is the most obvious answer, but typically the temperature returns to below normal soon after exercise is complete. Maybe natural supplements? Chili peppers? Hot baths? More and more exercise? I really am not sure.

Has anybody else noticed a connection between their body temperature and symptoms of fibromyalgia, and if so, how did you regulate your body temperature? Did you share your temperature changes with your doctor, and if so, what advise did they give you? Any comments you leave are sure to help not only me, but many others who are also have these same questions.

Thank you for reading.
-Aimee

Two Takes on Fibro from the American Chronic Pain Association


These are some interesting survey results by the American Chronic Pain Association:


On this same page, there is another, lengthier survey (the Executive Summary) that also has very interesting results. Please, check it out. I am working on getting it up on Fibromyalgia Files, but until then, this is where you can find it.
 
 
On the ACPAs website, there are many helpful tools for people with fibromyalgia and their supporters. This survey shows us that more often than not, the general population has a different view of fibromyalgia in some aspects, yet has the same views in other areas. For more information visit the American Chronic Pain Association webpage at theacpa.org


 

Thursday, March 19, 2015

Colaborative Reading and Information List for People With Chronic Illness


 

This is a collection of reading materials from other sites and such. They are all things I find interesting and think that other people with chronic illness will find interesting as well. I would like to make this a collective effort by the chronic illness community, so please feel free to pass on your favorite reading materials and they will be added to this list. You can do this by using the comments, or emailing the information to me. Thanks for your help! -Aimee (aimflo21@gmail.com)
 
 
Magazines & Books

Fibromyalgia and Chronic Pain Magazine from the National Fibromyalgia and Chronic Pain Association: (Please participate in their survey Hydrocodone Rescheduling: The First 100 Days)
 
 
Videos
 
Struggling to be Me With Chronic Pain:
 
 

 
 
Clinical Reviews/Case Studies/In-Depth Reading
 

Oxidative Stress
http://www.oxidativestressresource.org/

Oxidative Stress in Fibromyalgia
http://link.springer.com/article/10.1007/s00296-003-0427-8

Oxidative Stress and Mitochondrial Dysfunction in Fibromyalgia

Mitochondrial Dysfunction- A Biomarker for Fibromyalgia and ME/CFS?
http://www.prohealth.com/library/showarticle.cfm?libid=18130

Mitochondrial Myopathy Presenting as Fibromyalgia (Case Study)
http://www.medscape.com/viewarticle/761364

Drugs Cause Mitochondrial Damage
psychrights.org/research/Digest/.../DrugsCauseMitochondrialDamage.PD...
http://www.google.com/url?sa=t&rct=j&q=&esrc=s&source=web&cd=2&cad=rja&uact=8&ved=0CCcQFjAB&url=http%3A%2F%2Fpsychrights.org%2Fresearch%2FDigest%2FNLPs%2FDrugsCauseMitochondrialDamage.PDF&ei=QNwOVZ3rMc3coATWgoDwCw&usg=AFQjCNGvk016HTfiedDe4nv5K2fTjv0T7Q&sig2=EQ6oYl_s9SuEiCST0zaXtw&bvm=bv.88528373,d.cGU




 
 
Humor
 
You Know You Have A Chronic Illness When.....
Reprint with permission of author, Lisa Copen, Copyright 2012.

http://invisibleillnessweek.com/2009/05/12/you-know-you-have-a-chronic-illness-when/

Chronic Illness Humor
Courtesy of quirkygirl22
http://whatshouldwecallchronicillness.tumblr.com/

Sick Humor: The Top Ten Worse Suggestions Given to Someone With A Chronic Illness
Via Amy-Beth Maran @ But You Don't Look Sick
http://www.butyoudontlooksick.com/articles/sick-humor/sick-humor-the-top-ten-worst-suggestions-commonly-given-to-someone-with-a-chronic-illness/

Chronic Illness Humor: Memes
Susie @ Pins and Procrastination, Great Blog, Thank you!
http://pinsandprocrastination.com/chronic-illness-humor/


Other Blog Posts

What It’s Really Like To Be Chronically Ill
The worst part is that there is no escape. There is no light at the end of the tunnel. There is no happy ending. There is no way to make the incurable go away.
Lauren Anne, 1 Aug 2014


13 Reasons Why "You don't look sick/disabled" is Not a Compliment
Thanks to: So, Yeah, Anyways! Blog

A Fantastic Tumblr Post on Dismissal
Via: Making The Invisible Visible. Thank you!
10 Things You Should Say to Someone with Chronic Illness
Thank you to Susie @ Pins and Procrastination

Headache in the Temples
Tony @ Integrative Body Works
 
Patients & Providers Tell Stories of Dreaded Urine Drug Test
Dr. Jeffrey Fudin's Blog
 
The Healthy Brain Food In Every Fridge That Gets Overlooked
PsyBlog- Understand Your Mind, 2015
http://www.spring.org.uk/2015/03/the-healthy-brain-food-in-every-fridge-that-gets-overlooked.php

The Things You Should Avoid Saying to Young People Living With Arthritis
Chronically Creative
http://www.chronicallycreative.net/2012/10/the-things-you-should-avoid-saying-to.html


 

Greiving Is A Natural Response to Illness, Don't Be Ashamed!







This is the one thing I have heard most often when telling people about my fibromyalgia. "Hey, at least it's not cancer or MS or heart disease, etc." Boy, you are right, at least it isn't cancer. Let me not grieve because I got so lucky that it isn't cancer. Telling people not to grieve over their illness because it could be worse is like telling someone not to be joyful because other people have it better than them. It makes absolutely no sense! "Don't be sad about your cat dying little Billy because little Sally lost her dog this morning". "Now don't you be angry about loosing your husband because so-and-so lost their mom". "Don't be happy about winning the jackpot on the keno machine because someone else won the lottery." "Don't rejoice in your healthy, happy child because someone else's child is healthier and happier." You see, life doesn't work that way. So, please stop telling me I should be happy because I don't have cancer.
- With Love From Every #Spoonie Ever